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When my daughter, Carys, was born, and the full extent of her syndrome (Cardiofaciocutaneous (click on the name to get details about this serious condition – TSRA) began to reveal itself, I thought, “That’s it. My life is over.”. It felt like the beginning of the end.
In a way, I was right. Carys began to teach me about the things in life that really mattered. She completely changed my perspective. But it was a painful process.
When I reached my lowest ebb, when I had no other outlet, and nowhere to turn, I put pen to paper, and wrote a few words about my experiences with her, what I thought and how I felt.
That point marked the end of my old life, and the beginning of my new one. Far from being my ball and chain, my daughter gave me the freedom and the confidence to…
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