Unique

“Jamie came first, reluctantly thrust into the world three weeks before he was ready. My glorious, flame-haired, fiery-natured first-born son. He lay on my belly, still covered in the mucous of birth, looking at me, his dark unfocussed eyes swivelling. Overwhelmed by the full force of a mother’s love, I stared back, bemused by this tiny human scrap of life. Just a few ounces and a few days the right side of being premature, his body was so small, it fitted perfectly into his father’s cupped hands.

Two years later, Tom joined us, five days late and so keen to make up for lost time, he was almost born at a toll booth on the motorway. He arrived with a frown on his face. We wondered at it, but didn’t understand what it meant. We soon learned. He lay in his incubator, a giant amongst his peers, a tangle of wires snaking from his body to a bank of computers and monitors. Tenaciously he clung to life, and we all clung to each other. His first year was touch and go, but he made it. My beautiful second-born, Tom the comedian, the musician, the stuntman, always with the glass of life half full.

Still, someone was missing. We both felt it, Finnlay and I. So along came Carys. A longed for daughter and sister. Our family was complete.

Our sons had done their jobs well. They had prepared us for what was to come. We didn’t know it at the time, but we were ready.”

**********

Carys, my unique child. Experts expected her to die before she was born. But miracles happen every day, and at the age of seven, Carys is still very much with us.

She is one of less than an estimated three hundred unique individuals worldwide born with Cardofaciocutaneous Syndrome. Special indeed.

Drawing on my own experiences, Unique is a fictionalised story of a family’s struggles, as they try to cope with the arrival of such a child into their lives.

It turns them upside down, makes them question all their beliefs and previously conceived values. Yet as much as she is the catalyst which almost destroys them, Carys is also the hub around which they revolve, the glue which holds them all together.

The journey along life’s highway is not an easy one with a special needs child in tow. But it can be done. It will be arduous, full of challenges, victories and defeats. There will be joy, sorrow and fear.

But most of all, there will be love.

Life will never be the same. It just might be better.

 

Unique, a novel by Ali Isaac, is due for release in the summer of 2013.

2 Comments on “Unique

  1. Do I feel lucky? Well, do I? Thus far I have shared your video on my facebook, a rare effort for sure. I do not “like” many and share less, but this tickled.

    Your hero I need to read on, his life takes place hundreds of years before my little anti-heros arrive on the scene.

    Keep up the writing! Perhaps you and I will sit together someday on a panel of authors.

    Or I may just sit in the audience and wave like a madman on too much coffee until you notice me.

    (Then have me hauled out by security)

    Like

    • Well I am lucky and honoured to have been featured on your fb page…cheers! Youre clearly mad as a hatter! Which is why I like you so consider yourself followed! Nice to meet you Dash and looking forward to getting to know you.

      Like

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