It’s 630 in the morning, and outside, the sky is dark, but not so black as my mood. Carys is on her way to the children’s hospital in Dublin, and I’m sitting here, chain-drinking coffee while my heart… Read More
Posted on 30th Mar 2016 by Ali Isaac
Life With A Special Needs Child
anaesthetist, anxiety, Cardiofaciocutaneous Syndrome, cardiology, Carys, CFC, dental work, dentist, disability, disabled, Family, family life, fear, general anaesthetic, heart condition, Hypertrophic Cardiomyopathy, motherhood, mothering, rare syndrome, special needs, surgery, surgical procedure, tooth decay, weak heart
The birth of a child with a rare syndrome like Carys is truly a lesson in human nature, your own as much as anyone else’s. It’s like taking a trip into the dark side of your soul. It’s… Read More
Posted on 9th Sep 2014 by Ali Isaac
anger, anxiety, Cardiofaciocutaneous Syndrome, CFC, CFC International, delayed development, depression, disability, disabled, emotion, fate, haemangioma, hate, motherhood, mothering, rare syndrome, special needs, stress
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