aliisaacstoryteller

Perfect

I first became aware of this strange human condition in junior school. We had been set a project by the art teacher. I wanted my picture to be perfect, the best I could make it, so I was… Read More

Riding the Wave

It occasionally seems to me that some people think raising a child with special needs must be a romantic and heroic thing to do; they give you that look which says you’re doing something noble and good as… Read More

Epiphany

This week, I experienced a kind of epiphany. I was driving back from our local hospital. I had attended an AFO (leg brace) fitting with Carys, during which she screamed holy murder throughout, when in fact, all that… Read More

Five Things You Should NEVER Say to a Mother of a Special Needs Child!

I know the comments you are about to see are well-meaning, but quite frankly, they’re patronising, and insensitive, at best. We mothers of special needs kids get sick of hearing them. We don’t want you to treat us… Read More

Stalker

My daughter’s heart is a ticking time-bomb with a fuse of indeterminable length. It could blow at any minute. Hypertrophic Cardiomyopathy. This will be her stalker, prowling along behind her for all of her life. A dangerous killer… Read More